Wednesday, July 10th, 4:30 - 7:30 PM
Open to Boys (Grades 2-3) and Girls (Grades 2-4). The $50 entry fee includes participation and t-shirt with all proceeds going to the Brain Tumor Center at Boston Children's Hospital/Dana Farber.
Wednesday, July 10th, 4:30 - 7:30 PM
Open to Boys (Grades 2-3) and Girls (Grades 2-4). The $50 entry fee includes participation and t-shirt with all proceeds going to the Brain Tumor Center at Boston Children's Hospital/Dana Farber.
Wednesday, July 10th, 4:30 - 7:30 PM
Open to Boys (Grades 2-3) and Girls (Grades 2-4). The $50 entry fee includes participation and t-shirt with all proceeds going to the Brain Tumor Center at Boston Children's Hospital/Dana Farber.
Wednesday, July 10th, 4:30 - 7:30 PM
Open to Boys (Grades 2-3) and Girls (Grades 2-4). The $50 entry fee includes participation and t-shirt with all proceeds going to the Brain Tumor Center at Boston Children's Hospital/Dana Farber.
Raising funds to change the trajectory of pediatric brain cancer diagnoses and treatment for all families.
When our daughter Adelia was diagnosed with Diffuse Midline Glioma, or DMG in February 2023, we were propelled into a world that needs our attention and support. We quickly learned how vastly underfunded pediatric cancer research is, and how promising breakthroughs in labs can never reach patients due to lack of funding. Or sometimes, a trial will be cut off due to lack of funding, causing patients to abruptly change their treatment plans.
Only 4% of all federal funding for cancer research is allocated for pediatric cancer research. And of that 4%, only 1% is allocated for pediatric brain cancer - amounting to a mere 0.04% of all federal funding for cancer research. For a condition that is the most common type of brain tumor in children under the age of 5, these numbers are startling.
Each year, 300 to 500 families in the United States receive the same diagnosis we did. And here's a fact that brings home the urgency of our mission: the only standard of care for DMG is radiation, a treatment that has remained unchanged since Neil Armstrong's daughter received her diagnosis in 1962.
We can, and we must, do better for our children.
Adelia was diagnosed with Diffuse Midline Glioma, or DMG in February 2023. We call her The Wonder Girl because of her bravery, strength, and courage.
Adelia and her family are grateful to her team of amazing doctors at Dana Farber and for the love and support of our community.
Join our Facebook group to stay up-to-date on Adelia's progress and learn about community events and efforts.
Wednesday, July 10th, 4 - 7 PM
Open to boys and girls, grades 3 - 5. The $50 entry fee includes participation and t-shirt with all tournament proceeds going to the Brain Tumor Center at Boston Children's Hospital/Dana Farber.
Raising money for life-saving research and clinical trials for pediatric brain cancer patients. New treatments do not develop without grassroots campaigns like ours.
In 2023, with the generosity and support of our community we raised $106,000 which was directed to a promising clinical trial for kids with DIPG and DMG, with a goal to launch Spring 2024.
In 2024, we will be raising funds for a vital new Brain Tumor Center at Boston Children’s Hospital and Dana Farber, which will focus on
+ Fueling rapid diagnoses to personalize care
+ Building tumor-specific programs
+ Devising neurosurgical solutions at every turn
+ Creating a diverse community of brain tumor experts
Learn more about the Brain Tumor Center here.
Join our mailing list to stay up to date on ways you can get involved.
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Wednesday, July 10th, 4:30 - 7:30 PM
Open to Boys (Grades 2-3) and Girls (Grades 2-4). The $50 entry fee includes participation and t-shirt with all proceeds going to the Brain Tumor Center at Boston Children's Hospital/Dana Farber.
Wednesday, July 10th, 4:30 - 7:30 PM
Open to Boys (Grades 2-3) and Girls (Grades 2-4). The $50 entry fee includes participation and t-shirt with all proceeds going to the Brain Tumor Center at Boston Children's Hospital/Dana Farber.
Double walled plastic tumbler with teal top, featuring our Adelia Strong "Wonder Woman" logo; Steel tumbler.
Large and small beaded hoop drop earrings handmade by Adelia's neighbor, Paige Fabella, in Adelia's favorite color - teal.
On August 18, Team Adelia the Wonder Girl will be returning to the Falmouth Road Race, fundraising for Dana Farber and we'd love for you to join us!
Ages 10+ have the option to participate in person.
Ages 9 and under can join our virtual team - completing the miles as a group throughout the week of August 11th in our special kid's program
The week-long fundraiser at HHS organized by The Unity Project will include Adelia stickers and shirts sold in the lobby throughout the week, hand-picked music featuring Adelia’s favorite songs, a chalk mural in front of the school, a bake sale on Friday, and more.
In 2024, we will be raising funds for a vital new Brain Tumor Center at Boston Children’s Hospital and Dana Farber, which will focus on
+ Fueling rapid diagnoses to personalize care
+ Building tumor-specific programs
+ Devising neurosurgical solutions at every turn
+ Creating a diverse community of brain tumor experts
Learn more about the Brain Tumor Center here.
We are thrilled to have community members support our efforts by hosting their own fundraiser initiatives and excited to help you raise money for the Brain Tumor Center at Dana Farber and Boston Children's Hospital.
Click the button below for resources and information.
Following Adelia's diagnoses in February 2023, a private Go Fund Me campaign was established to cover the costs to clinical trials and other immunotherapy methods, as well as providing emotional and practical support to Adelia and her family.
This fund remains open as a way to help ease their burden as Adelia undergoes treatment.
Read our monthly newsletter HERE - a platform to highlight all the amazing contributions of YOU, our #AdeliaStrong community, and to share information and updates on ways to get involved.
Follow the families Facebook page HERE for updates about Adelia's progress.
Join our mailing list HERE to receive our monthly newsletters.
Dana-Farber runners set the pace in the fight against cancer by raising funds to support groundbreaking research and extraordinary patient care. Support our Hingham team, racing towards the ultimate finish line: a world without cancer. All proceeds benefit DMG/DIPG research at Dana Farber.
The public bid on tickets to Billy Joel and Stevie Nicks, an exclusive Talbot's shopping experience, signed Tom Brady photo and a Paige Railsback painting. All proceeds benefit DMG/DIPG research at Dana Farber.
We welcomed 150+ families for an afternoon of fun and fundraising featuring imaginative games, creative play, and summer surprises for all! All proceeds benefit DMG/DIPG research at Dana Farber.
On June 20th, we gathered at Bar Method for a barre class in support for Adelia and raise money for Dana-Farber. 100% of the proceeds were donated to Dr. Daphne's research fund. All proceeds benefit DMG/DIPG research at Dana Farber.
On June 28th, the community gathered at Bobbles and Lace for an evening of drinks, snacks and shopping, and a generous portion of the sales were donated to Dana Farber. All proceeds benefit DMG/DIPG research at Dana Farber.
Following Adelia's diagnoses in February 2023, a private Go Fund Me campaign was established to cover the costs to clinical trials and other immunotherapy methods, as well as providing emotional and practical support to Adelia and her family.
Study finds improved survival for incurable brain tumor, providing ‘a crack in the armor’ (Michigan Medicine, August 16, 2023)
For the first time, researchers have found a potential drug candidate that improved outcomes for patients with a type of childhood brain tumor for which there are no effective treatments. The compound, called ONC201, nearly doubled survival for patients with diffuse midline glioma or diffuse intrinsic pontine glioma, compared to previous patients.
Wednesday, July 10th, 4:30 - 7:30 PM
Open to Boys (Grades 2-3) and Girls (Grades 2-4). The $50 entry fee includes participation and t-shirt with all proceeds going to the Brain Tumor Center at Boston Children's Hospital/Dana Farber.