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Charity Street Hockey Tournament

Wednesday, July 10th, 4:30 - 7:30 PM 

Open to Boys (Grades 2-3) and Girls (Grades 2-4). The $50 entry fee includes participation and t-shirt with all proceeds going to the Brain Tumor Center at Boston Children's Hospital/Dana Farber.

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Charity Street Hockey Tournament

Wednesday, July 10th, 4:30 - 7:30 PM 

Open to Boys (Grades 2-3) and Girls (Grades 2-4). The $50 entry fee includes participation and t-shirt with all proceeds going to the Brain Tumor Center at Boston Children's Hospital/Dana Farber.

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Charity Street Hockey Tournament

Wednesday, July 10th, 4:30 - 7:30 PM 

Open to Boys (Grades 2-3) and Girls (Grades 2-4). The $50 entry fee includes participation and t-shirt with all proceeds going to the Brain Tumor Center at Boston Children's Hospital/Dana Farber.

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Charity Street Hockey Tournament

Wednesday, July 10th, 4:30 - 7:30 PM 

Open to Boys (Grades 2-3) and Girls (Grades 2-4). The $50 entry fee includes participation and t-shirt with all proceeds going to the Brain Tumor Center at Boston Children's Hospital/Dana Farber.

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Show off your brand

Enhance your user experience and build brand equity with your design vernacular. 

Enhance your user experience and build brand equity with your design vernacular.

the cause

Close the Gap in Pediatric Brain Cancer Care

Raising funds to change the trajectory of pediatric brain cancer diagnoses and treatment for all families.


When our daughter Adelia was diagnosed with Diffuse Midline Glioma, or DMG in February 2023, we were propelled into a world that needs our attention and support. We quickly learned how vastly underfunded pediatric cancer research is, and how promising breakthroughs in labs can never reach patients due to lack of funding. Or sometimes, a trial will be cut off due to lack of funding, causing patients to abruptly change their treatment plans. 

 

Only 4% of all federal funding for cancer research is allocated for pediatric cancer research. And of that 4%, only 1% is allocated for pediatric brain cancer - amounting to a mere 0.04% of all federal funding for cancer research. For a condition that is the most common type of brain tumor in children under the age of 5, these numbers are startling.


Each year, 300 to 500 families in the United States receive the same diagnosis we did. And here's a fact that brings home the urgency of our mission: the only standard of care for DMG is radiation, a treatment that has remained unchanged since Neil Armstrong's daughter received her diagnosis in 1962.

 

We can, and we must, do better for our children.


Make a donation today.

Meet Adelia

Adelia was diagnosed with Diffuse Midline Glioma, or DMG in February 2023.  We call her The Wonder Girl because of her bravery, strength, and courage.


Adelia and her family are grateful to her team of amazing doctors at Dana Farber and for the love and support of our community.

Join our Facebook group to stay up-to-date on Adelia's progress and learn about community events and efforts.

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Sign Up for our Charity Hockey Tournament

 


Wednesday, July 10th, 4 - 7 PM 

Open to boys and girls, grades 3 - 5. The $50 entry fee includes participation and t-shirt with all tournament proceeds going to the Brain Tumor Center at Boston Children's Hospital/Dana Farber.

Enhance your user experience and build brand equity with your design vernacular.

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Sign up to join our Falmouth Road Race Team 

On August 18, 2024 Team #AdeliaStrong will be returning to the Falmouth Road Race, fundraising for Dana Farber and we'd love for you to join us! Provide our email address to receive updates about signing up for the race and joining our team.

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Your Dollars Make a Difference

Raising money for life-saving research and clinical trials for pediatric brain cancer patients. New treatments do not develop without grassroots campaigns like ours.


In 2023, with the generosity and support of our community we raised $106,000 which was directed to a promising clinical trial for kids with DIPG and DMG, with a goal to launch Spring 2024.

 

In 2024, we will be raising funds for a vital new Brain Tumor Center at Boston Children’s Hospital and Dana Farber, which will focus on
+ Fueling rapid diagnoses to personalize care
+ Building tumor-specific programs
+ Devising neurosurgical solutions at every turn
+ Creating a diverse community of brain tumor experts

 

Learn more about the Brain Tumor Center here.

Join our mailing list to stay up to date on ways you can get involved.

Your Dollars Make a Difference

Raising money for life-saving research and clinical trials for pediatric brain cancer patients.  New treatments do not develop without grassroots campaigns like ours. 

Scroll down to learn how you can get involved.

Get Your Merch

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Erin Hildebrant

Erin Hildebrant will be speaking about their experience working as an event marketer. 

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Blair Doster

Blair Doster will be speaking about their experience as an art director and organizer of design events.

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Simone Andrews

Simone Andrews will be speaking about their experience as a film producer.

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Wednesday, July 10th, 4:30 - 7:30 PM 

Open to Boys (Grades 2-3) and Girls (Grades 2-4). The $50 entry fee includes participation and t-shirt with all proceeds going to the Brain Tumor Center at Boston Children's Hospital/Dana Farber.

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Get your Merch!

Purchase #AdeliaStrong hats, t-shirts, sweatshirts, mugs and tumblers!

Wednesday, July 10th, 4:30 - 7:30 PM 

Open to Boys (Grades 2-3) and Girls (Grades 2-4). The $50 entry fee includes participation and t-shirt with all proceeds going to the Brain Tumor Center at Boston Children's Hospital/Dana Farber.

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Get Your Merch

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Winter Hat ($20)

Cozy and cute gray winter hat,  featuring the Adelia Strong "Wonder Woman" logo

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Whitepaper

Adult sweatshirt ($55)

Light gray sweatshirt featuring the Adelia Strong "Wonder Woman" logo

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Podcast

Kid's Sweatshirt ($40)

Light gray sweatshirt featuring the Adelia Strong "Wonder Woman" logo

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Annual Report

T-Shirt ($20-25)

Sandy colored tee featuring our AdeliaStrong "Wonder Woman" logo across the chest

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Tumblers and Steel mugs ($30-45)

Double walled plastic tumbler with teal top, featuring our Adelia Strong "Wonder Woman" logo; Steel tumbler.

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Custom earrings by paige fabella ($15-20)

Large and small beaded hoop drop earrings handmade by Adelia's neighbor, Paige Fabella, in Adelia's favorite color - teal.

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Nike Running Hat ($40)

White running hat, featuring our Adelia Strong "Wonder Woman" logo.

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Your Dollars Make a Difference

Enhance your user experience and build brand equity with your design vernacular. 

Enhance your user experience and build brand equity with your design vernacular.

Participate in an Upcoming Fundraiser

Whitepaper

Falmouth Road Race

August 18, 2024

On August 18, Team Adelia the Wonder Girl will be returning to the Falmouth Road Race, fundraising for Dana Farber and we'd love for you to join us! 

 

Ages 10+ have the option to participate in person. 

Ages 9 and under can join our virtual team - completing the miles as a group throughout the week of August 11th in our special kid's program


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Hingham High School "Adelia Week" 

April 29 - May 3

The week-long fundraiser at HHS organized by The Unity Project will include Adelia stickers and shirts sold in the lobby throughout the week, hand-picked music featuring Adelia’s favorite songs, a chalk mural in front of the school, a bake sale on Friday, and more.


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Help Build the Brain Tumor Center

In 2024, we will be raising funds for a vital new Brain Tumor Center at Boston Children’s Hospital and Dana Farber, which will focus on
+ Fueling rapid diagnoses to personalize care
+ Building tumor-specific programs
+ Devising neurosurgical solutions at every turn
+ Creating a diverse community of brain tumor experts

 
Learn more about the Brain Tumor Center here.

Donate
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Host a Fundraiser

We are thrilled to have community members support our efforts by hosting their own fundraiser initiatives and excited to help you raise money for the Brain Tumor Center at Dana Farber and Boston Children's Hospital. 


Click the button below for resources and information. 


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Family Fundraiser

Following Adelia's diagnoses in February 2023, a private Go Fund Me campaign was  established to cover the costs to clinical trials and other immunotherapy methods, as well as providing emotional and practical support to Adelia and her family. 


This fund remains open as a way to help ease their burden as Adelia undergoes treatment.

Make a donation
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Visit our Main Page

To learn more about our goals and upcoming intiatives.

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Stay up to Date

March Newsletter

Event Organizer

Read our monthly newsletter HERE - a platform to highlight all the amazing contributions of YOU, our #AdeliaStrong community, and to share information and updates on ways to get involved. 

Family Facebook Page

Art Director

Follow the families Facebook page HERE for updates about Adelia's progress. 

Join our Mailing List

Marketing Director

Join our mailing list HERE to receive our monthly newsletters. 

Past and Upcoming Fundraising Initiatives

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Join our 2024 Falmouth Road Race Team

On August 18, Team #AdeliaStrong will be returning to the Falmouth Road Race, fundraising for Dana Farber and we'd love for you to join us! Contact us to receive updates about joining our team. Registration opens March 2024.

Join us
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Whitepaper

Falmouth Road Race | August 20, 2023

Dana-Farber runners set the pace in the fight against cancer by raising funds to support groundbreaking research and extraordinary patient care. Support our Hingham team, racing towards the ultimate finish line: a world without cancer.  All proceeds benefit DMG/DIPG research at Dana Farber. 

Make a donation to our team
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Podcast

 Silent Auction

The public bid on tickets to Billy Joel and Stevie Nicks, an exclusive Talbot's shopping experience,  signed Tom Brady photo and a Paige Railsback painting. All proceeds benefit DMG/DIPG research at Dana Farber. 

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Annual Report

Paragon Boardwalk Fundraiser | August, 2023

We welcomed 150+ families for an afternoon of fun and fundraising featuring imaginative games, creative play, and summer surprises for all!  All proceeds benefit DMG/DIPG research at Dana Farber. 


Check out our 2023 event!
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Barre Class | June, 2023 

On June 20th, we gathered at Bar Method for a barre class in support for Adelia and raise money for Dana-Farber. 100% of the proceeds were donated to Dr. Daphne's research fund. All proceeds benefit DMG/DIPG research at Dana Farber. 

Join our mailing list
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Bobbles and Lace | June, 2023

On June 28th, the community gathered at Bobbles and Lace for an evening of drinks, snacks and shopping, and a generous portion of the sales were donated to Dana Farber.  All proceeds benefit DMG/DIPG research at Dana Farber. 

Join our mailing list
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Family Fundraiser | February, 2023 

Following Adelia's diagnoses in February 2023, a private Go Fund Me campaign was  established to cover the costs to clinical trials and other immunotherapy methods, as well as providing emotional and practical support to Adelia and her family. 

Make a donation
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Resources: Understanding Diffuse Midline Glioma

Whitepaper

Study finds improved survival for incurable brain tumor, providing ‘a crack in the armor’ (Michigan Medicine, August 16, 2023)

For the first time, researchers have found a potential drug candidate that improved outcomes for patients with a type of childhood brain tumor for which there are no effective treatments. The compound, called ONC201, nearly doubled survival for patients with diffuse midline glioma or diffuse intrinsic pontine glioma, compared to previous patients.


Read More

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Podcast

Gliomas lean on pyrimidines (Nature Reviews Cancer, September 21, 2022)

Gliomas are the most common form of brain malignancy and are associated with resistance to therapy and high mortality.


Now, two studies reveal a targetable metabolic signature in glioma that could be exploited to treat these cancers.


Read More


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Annual Report

A druggable addiction to de novo pyrimidine biosynthesis in diffuse midline glioma (Cancer Cell)

Unlike most other pediatric cancers, survival for DMGs has not changed in over 50 years. Given the failure of conventional therapeutic modalities, considerable effort has been devoted to development of targeted therapeutics. Learn about one research effort here. 


Read more.

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Join our Mailing List

Want to get more involved? Sign up for our mailing list to stay up to date on efforts. 

Wednesday, July 10th, 4:30 - 7:30 PM 

Open to Boys (Grades 2-3) and Girls (Grades 2-4). The $50 entry fee includes participation and t-shirt with all proceeds going to the Brain Tumor Center at Boston Children's Hospital/Dana Farber.

Join Us
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“

”

Event photos courtesy of © Joshua Ross Photography

— Leonard Bernstein

Show off your brand

Enhance your user experience and build brand equity with your design vernacular. 

Enhance your user experience and build brand equity with your design vernacular.

Event Details

Friday
, 
January 
10
, 
2020
7:00pm 
EST

Contact Team #AdeliaStrong

To learn more about our fundraising initiatives or find ways to get involved, contact our team. 

Wednesday, July 10th, 4:30 - 7:30 PM 

Open to Boys (Grades 2-3) and Girls (Grades 2-4). The $50 entry fee includes participation and t-shirt with all proceeds going to the Brain Tumor Center at Boston Children's Hospital/Dana Farber.

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Event Agenda

1pm

Registration Open

All attendees should convene in the Expo Hall to check in at the registration desk.

2pm

Roundtable Panel: Entrepreneurial Financing

Learn tools for helping your business grow.

3pm

Keynote: We Are Innovators

Our featured speaker will deliver a keynote on future innovations in finance.

FEATURED SPEAKERS

Hank Henry

Hank Henry will be speaking on financial health for organizations.

Bilou McCready

Bilou McCready will be speaking on our "Entrepreneurial Financing" roundtable.

Janet Franklin

Janet Franklin will be speaking on the simplicities of personal finance.

Join us

RSVP and join us for an exciting night of networking and discussion.

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Special thanks to our partners

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